Yesterday, May 8, we commemorate International Thalassemia Day, a day dedicated to raising awareness about this congenital and chronic hematological disease. Although it is not widely known, thalassemia affects the lives of thousands of people worldwide, who face ongoing challenges due to the complications of this condition. At #FFIS, #IMIB, and #M...
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Last week, one of NANEMIAR’s partners - Jenny van Asbeck (Mercurna) - had the opportunity to speak at the 4th RNA Leaders Congress in Basel, Switzerland. It was great to share Mercurna’s latest advancements in targeted mRNA therapy development and to network with fellow researchers, industry leaders, and investors, all passionate about the future o...
Every February 28th, Rare Disease Day is celebrated, with the aim of raising awareness about rare diseases and the impact they have on the lives of people who suffer from them. The following NANEMIAR story contains the testimony of María Dolores Muñoz Navarro (Patient of beta-thalassemia Hospital Clínico Universitario Virgen de la Arrixaca - Murcia...
For María Dolores Muñoz, a student in the biomedical field and a patient with congenital anaemia, research on rare diseases is not only a necessity, but a source of hope. Her testimony highlights the importance of continuing to advance clinical studies to improve the quality of life of those who live with these pathologies. For María Dolores, studi...
Despite some progress in recent decades, with varying success depending on disciplines and countries, gender equality in science remains challenging. Today, only one in three scientists worldwide is a woman. Lack of gender equality in science does not just affect women, it also limits scientific progress and hamstrings a country’s development and i...